This is a photo of my niece Sophie who has MPS VI, and her Mum. No matter how much she goes through her smile is always the light of our lives! She is so brave, she is our hero.

She needs treatment that costs roughly $100,000 per year for every 5kg she weighs. Without this treatment Sophie will die. So far we have raised $25,000 but cannot start the treatment till we have enough for the full year. This treatment is not government approved therefore it is up to us to fight for Sophies life.

You can help Sophie's fight for life. To make a donation see go to www.oursophie.notlong.com
— Auntie Carla