Carers

Carers special: Noah’s story

Tuesday, May 4, 2010
Noah’s story
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Millions of Australians are disabled themselves or care for someone with a profound disability. Read the shocking stories of those left to soldier on in silence.

Noah’s story

“We can’t get help because we’re from the UK”

“My son Noah has autism,” says his mum.

“I am from the UK and here in Australia on my husbands work permit, We have been here 11 months now and found out about Noah’s autism 5 months ago.

We cannot have any help with intervention for noah, or any therapy as we are not residents.

We are a one wage family, cannot afford to get home to the UK for help and cannot afford the 2500 dollar fee to apply for residency.

So not only have we had the blow of finding out he has autism. It always boils down to money, and it hurts that my little boy is wasting time at a early age because his dad and I have little money.

Noah was 3 on March 23, we had no idea in the UK that Noah had autism.

Maybe if we did and we knew all our options we would have not moved to other side of the world, with no family support.

I would not change Noah for the world, but if I could, I would change the world for him.”

Do you want to help Noah's family?

Take 30 seconds to sign the Mad as Hell pledge.

The pledge calls for people to vote in the next Federal and State elections, for the political party which publicly promises to transform Australia’s broken, inefficient, crisis-driven disability support system.

Are you a carer? Do you have a story to share with us?

Send in your contact details, story (no longer than 300 words) and photos to wd@womansday.com.au.

For more inspirational carers stories click here

User comments
My only son is in a C.R.U. = Community Residential Unit, and since being there now has Prader-Willi Syndrome, which is rare with about 1 in 20,000 births, but whilst with me his weight was to his Body Mass Index always, because he inherited from me, hypoglycaemia - for which I gave his food to cater for that - but was told that my son was "atypical" of PWS. Since being in the C.R.U. his weight has 'ballooned' to over 90 kilograms when it should be at the highest 55 kilo's. Public Servants as carers are in my son's case are HOPELESS AND HELPLESS - even to the medical persons to whom he has been taken which are now three and NOT ONE can reduce the weight! We get it down over a long week end together, but as soon as he returns there ON it goes again. When we came back from Adelaide in March, the weight was down to 87 k's and went back to the C.R.U. for dinner and supper - next morning the weight was over 90 kilos again.
Your stories make me realize that we are going backwards in this country. When my son was diagnosed with a severe intellectual disability thirty-three years ago, we walked straight into a range of physio, occupational and speech therapies as well as case management and respite. Now there are long waiting lists. After working so hard and struggling to give our son every chance in life, we are in our sixties (my husband is nearly seventy) still caring for him because there is nowhere in the lucky country for him to go. Supported accommodation has become a thing of the past and families are supposed to go on forever. The tragedy is not in having a disabled child - it is doing so in an environment that is callous and unsupportive. Thank you for featuring the plight of carers. I appeal to all your readers to please support the National Disability Insurance Scheme, sign the Mad As Hell pledge and vote "YES" on this website. We must share the load if we are to be the land of the fair go.

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