Carers

Carers special: Kristina and Justin’s story

Tuesday, May 4, 2010
Kristina and Justin’s story
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Millions of Australians are disabled themselves or care for someone with a profound disability. Read the shocking stories of those left to soldier on in silence.

Kristina and Justin’s story

“My son’s needs are not being met”

“My son Justin looks just like any other little boy at his school,” says his mum Kristina.

“But unlike the other children his ability to communicate is severely impared due to Autism and Apraxia of Speech.

His inability to communicate has limited his ability to access mainstream school, and is not suited to special school as he is not intellectuality impaired.

We have got him a voice output device but the extra attention he needs is unable to be met by visiting speech therapists to his school and teachers are stretched to the limit.

I am struggling to balance private speech therapy costs and juggling normal family issues.”

Do you want to help Kristina and Justin’s family?

Take 30 seconds to sign the Mad as Hell pledge.

The pledge calls for people to vote in the next Federal and State elections, for the political party which publicly promises to transform Australia’s broken, inefficient, crisis-driven disability support system.

Are you a carer? Do you have a story to share with us?

Send in your contact details, story (no longer than 300 words) and photos to wd@womansday.com.au.

For more inspirational carers stories click here

User comments
My son is 3 and also has autism with dyspraxia (apraxia of speech), i think we will be in the same position that Kristina finds her family with Justin - the story sounds so similar and the same as my son is not cognitively impaired in fact my son is streams ahead intellectually than his peers he just can't speak well and needs support. We have found the 'Helping Children with Autism' package absolutely useless, nothing but a gesture without meaning. We can't access it because Autism SA have told us we can only use certain providers which means travelling further for us and sending our son to environments he is unfamiliar with and that we can't use the funding money for the trusted speech therapist & ot that we presently see. This means we pay for everything out of pocket. We need freedom to use this money how we see fit and we can be trusted to do the right thing for our child and otherwise this money is useless. I worry for the future.
IF THE SUCCESS OF A SOCIETY IS MEASURED BY HOW IT TREATS ITS MOST VULNERBALE CITIZENS AUSTRALIA RATES NEAR THE BOTTOM OF THE OECD COUNTRIES - WE BELONG TO THE THIRD WORLD. THE INSTITUTIONS WERE CLOSED BUT LITTLE WAS INVESTED IN ALTERNATIVE ACCOMMODATION OR PROGRAMS. A NATIONAL INSURANCE SCHEME WILL HELP - BUT THERE IS STILL THE MATTER OF ACCOMMODATION - PUBLIC POLICY IN THE HOUSING SECTOR HAS ALSO BEEN SEVERELY NEGLECTED. THE PRISONS AND THE STREETS ARE THE NEW INSTITUTIONS FOR THE DISABLED AND MENTALLY ILL. MY SON WITH AUTISM AND INTELLECTUAL DISABILITY IS NOW IN HIS 40'S - I AM NO CLOSER TO HAVING HIM SUITABLY HOUSED THAN I WAS 20 YEARS AGO. - DESPITE HAVING SPENT 1000'S OF HOURS OF TIME AND COUNTLESS DOLLARS WORKING ON COMMITTEES SUPPORTING SERVICES FOR PEOPLE WITH AUTISM. THE DEVELOPERS HAVE MADE A KILLING BADLY CONSTRUCTING SCHOOL HALLS - IF ONLY THE RUDD GOVERNMENT HAD PUT THAT MONEY INTO THE HOUSING THE DISABLED!

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