Millions of Australians are disabled themselves or care for someone with a profound disability. Read the shocking stories of those left to soldier on in silence.
The Steele family
"I had to do handstands and double back flips to get respite"
“My daughter Imyjen, 9, has Swartz Jampel Syndrome a genetic condition that makes her muscles stiff,” says her mum Christine.
My beef is that you have to do handstands, double back flips and cartwheels to get respite in this country.
There are so many rules and regulations. Why can’t we just be like other families and be supported and be part of the community?
When Imyjen was born and had to go to the hospital every day, I had another daughter Auraria was 2. I had to drive to my parents two hours away to drop her off, then spend all day at the hospital and drive back.
Caring for our disabled individuals isn’t just about the individual it should be about the whole family.”
Do you want to help the Steele family?
Take 30 seconds to sign the Mad as Hell pledge.
The pledge calls for people to vote in the next Federal and State elections, for the political party which publicly promises to transform Australia’s broken, inefficient, crisis-driven disability support system.
Are you a carer? Do you have a story to share with us?
Send in your contact details, story (no longer than 300 words) and photos to wd@womansday.com.au.
For more inspirational carers stories click here
